- Library Home /
- Search Collections /
- Open Collections /
- Browse Collections /
- UBC Theses and Dissertations /
- Understandings of cancer genetics : the case of colon...
Open Collections
UBC Theses and Dissertations
UBC Theses and Dissertations
Understandings of cancer genetics : the case of colon cancer Small, R. Dan
Abstract
More men and women die every year from colorectal cancer (CRC) in Canada than from any other cancer with the exception of lung cancer (Canada 1997). The focus of this study is on the most common form of hereditary cancer in both men and women: hereditary nonpolyposis colorectal cancer (HNPCC) (Kinney, et al. 2000). The fundamental thesis of this study is that individuals who are genetically at risk for HNPCC employ healing emplotment, a narrative strategy, for constructing their autobiography and managing the lifelong threats to themselves posed by this unique cancer. This concept builds on other work in medical anthropology on illness narratives and therapeutic emplotment that focuses on the ways that patients and practitioners utilize narrative to interpret illness and therapies (DelVecchio-Good, et al. 1994; Good and Good 1994; Gordon and Paci 1997; Kleinman 1988; Mattingly 1989; 1994; 1998; Saris 1994; 1995; 1996). I argue that personhood is at the very heart of the healing process. Personhood is as a process for describing the ongoing negotiation between the self as the centre of experience and the cultural forces that surround it. Furthermore, just as Bourdieu (1990; 1995; 1999) discusses forms of symbolic capital in society, I have expanded upon the notion by recognizing the role of psychological and emotional resources in the concept of emotional capital. Emotional capital flows from personal connections with others: lovers, family, friends and it holds absolute value relative to all other forms of capital during fateful moments. The interviews in this study indicate that emotional capital is a fundamental part of individuals' interpretations of their experience of genetic risk. Using ethnography and open-ended interviews with 33 individuals from 15 families at risk for HNPCC, this study examines the unique aspects of hereditary colon cancer and investigates the dynamic process people engage in to address the social and clinical threats posed by HNPCC. As well, 18 medical practitioners, primarily specialists in oncology, were also interviewed in order to obtain insight into clinician understandings of HNPCC and the relationship between medicine and clinical genetics.
Item Metadata
Title |
Understandings of cancer genetics : the case of colon cancer
|
Creator | |
Publisher |
University of British Columbia
|
Date Issued |
2003
|
Description |
More men and women die every year from colorectal cancer (CRC) in Canada
than from any other cancer with the exception of lung cancer (Canada 1997). The focus
of this study is on the most common form of hereditary cancer in both men and women:
hereditary nonpolyposis colorectal cancer (HNPCC) (Kinney, et al. 2000). The
fundamental thesis of this study is that individuals who are genetically at risk for HNPCC
employ healing emplotment, a narrative strategy, for constructing their autobiography
and managing the lifelong threats to themselves posed by this unique cancer. This
concept builds on other work in medical anthropology on illness narratives and
therapeutic emplotment that focuses on the ways that patients and practitioners utilize
narrative to interpret illness and therapies (DelVecchio-Good, et al. 1994; Good and
Good 1994; Gordon and Paci 1997; Kleinman 1988; Mattingly 1989; 1994; 1998; Saris
1994; 1995; 1996). I argue that personhood is at the very heart of the healing process.
Personhood is as a process for describing the ongoing negotiation between the self as the
centre of experience and the cultural forces that surround it. Furthermore, just as
Bourdieu (1990; 1995; 1999) discusses forms of symbolic capital in society, I have
expanded upon the notion by recognizing the role of psychological and emotional
resources in the concept of emotional capital. Emotional capital flows from personal
connections with others: lovers, family, friends and it holds absolute value relative to all
other forms of capital during fateful moments. The interviews in this study indicate that
emotional capital is a fundamental part of individuals' interpretations of their experience
of genetic risk. Using ethnography and open-ended interviews with 33 individuals from
15 families at risk for HNPCC, this study examines the unique aspects of hereditary
colon cancer and investigates the dynamic process people engage in to address the social
and clinical threats posed by HNPCC. As well, 18 medical practitioners, primarily
specialists in oncology, were also interviewed in order to obtain insight into clinician
understandings of HNPCC and the relationship between medicine and clinical genetics.
|
Extent |
22266745 bytes
|
Genre | |
Type | |
File Format |
application/pdf
|
Language |
eng
|
Date Available |
2009-11-12
|
Provider |
Vancouver : University of British Columbia Library
|
Rights |
For non-commercial purposes only, such as research, private study and education. Additional conditions apply, see Terms of Use https://open.library.ubc.ca/terms_of_use.
|
DOI |
10.14288/1.0099729
|
URI | |
Degree | |
Program | |
Affiliation | |
Degree Grantor |
University of British Columbia
|
Graduation Date |
2003-05
|
Campus | |
Scholarly Level |
Graduate
|
Aggregated Source Repository |
DSpace
|
Item Media
Item Citations and Data
Rights
For non-commercial purposes only, such as research, private study and education. Additional conditions apply, see Terms of Use https://open.library.ubc.ca/terms_of_use.