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UBC Theses and Dissertations
Perpetual innovation: child care decisions of parents using pediatric in-home nursing respite care Flato, Linda Margaret
Abstract
Pediatric home care for children with medically complex conditions is a growing phenomenon made possible by parents willing and able to care for these children at home. While pediatric home care may decrease costs to the health care system, and provide social and developmental benefits to these children, their parents often have limited child care options which would enable them to rejuvenate from parenting activities and fulfil l other roles and responsibilities. To illuminate this child care dilemma, this study examines how parents of children with medically complex conditions choose to utilize in-home pediatric nursing respite care as a source of child care. This investigation constitutes one part of a larger multi-variable, pre-post descriptive design study evaluating the Nursing Respite Program in British Columbia, Canada. To explore the process by which parents use nursing respite as child care, qualitative data from first (prerespite service) and second (six-months after beginning service) visits with the parents from six families were analyzed using grounded theory. Interviews and accompanying field notes were audiotaped and transcribed for analysis using the constant comparative method. Study findings indicate that parents of children with medically complex conditions choose to utilize nursing respite as child care through a process of perpetual innovation. Throughout this process, dynamic situational factors require parents to continually modify their use of nursing respite care in relation to other forms of child care. In a cyclical manner, parents repeatedly adopt strategies aimed at creating child care situations that are mutually beneficial to both parent and child. Together, these strategies suggest a decision-making framework embedded within the process of perpetual innovation. While literature related to these study findings is sparse, the findings are discussed within the context of research on child care, respite care, and parenting children with chronic conditions. In addition, conceptual cues which may be used to integrate study findings into the larger evaluation study are identified. Finally, policy implications of study findings are discussed in relation to pediatric respite cafe delivery.
Item Metadata
Title |
Perpetual innovation: child care decisions of parents using pediatric in-home nursing respite care
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Creator | |
Publisher |
University of British Columbia
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Date Issued |
1995
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Description |
Pediatric home care for children with medically
complex conditions is a growing phenomenon made possible by
parents willing and able to care for these children at
home. While pediatric home care may decrease costs to the
health care system, and provide social and developmental
benefits to these children, their parents often have
limited child care options which would enable them to
rejuvenate from parenting activities and fulfil l other
roles and responsibilities.
To illuminate this child care dilemma, this study
examines how parents of children with medically complex
conditions choose to utilize in-home pediatric nursing
respite care as a source of child care. This investigation
constitutes one part of a larger multi-variable, pre-post
descriptive design study evaluating the Nursing Respite
Program in British Columbia, Canada.
To explore the process by which parents use nursing
respite as child care, qualitative data from first (prerespite
service) and second (six-months after beginning
service) visits with the parents from six families were
analyzed using grounded theory. Interviews and
accompanying field notes were audiotaped and transcribed
for analysis using the constant comparative method.
Study findings indicate that parents of children with
medically complex conditions choose to utilize nursing
respite as child care through a process of perpetual
innovation. Throughout this process, dynamic situational
factors require parents to continually modify their use of
nursing respite care in relation to other forms of child
care. In a cyclical manner, parents repeatedly adopt
strategies aimed at creating child care situations that are
mutually beneficial to both parent and child. Together,
these strategies suggest a decision-making framework
embedded within the process of perpetual innovation.
While literature related to these study findings is
sparse, the findings are discussed within the context of
research on child care, respite care, and parenting
children with chronic conditions. In addition, conceptual
cues which may be used to integrate study findings into the
larger evaluation study are identified. Finally, policy
implications of study findings are discussed in relation to
pediatric respite cafe delivery.
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Extent |
4084397 bytes
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Genre | |
Type | |
File Format |
application/pdf
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Language |
eng
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Date Available |
2009-01-31
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Provider |
Vancouver : University of British Columbia Library
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Rights |
For non-commercial purposes only, such as research, private study and education. Additional conditions apply, see Terms of Use https://open.library.ubc.ca/terms_of_use.
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DOI |
10.14288/1.0099004
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URI | |
Degree | |
Program | |
Affiliation | |
Degree Grantor |
University of British Columbia
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Graduation Date |
1995-11
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Campus | |
Scholarly Level |
Graduate
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Aggregated Source Repository |
DSpace
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Item Media
Item Citations and Data
Rights
For non-commercial purposes only, such as research, private study and education. Additional conditions apply, see Terms of Use https://open.library.ubc.ca/terms_of_use.