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Parents’perceptions of the interpersonal aspects of care in a pediatric tertiary care neurosciences unit

University of British Columbia

This exploratory, descriptive study was designed to examine parents' perceptions of the interpersonal aspects of care-giving and to explore differences in parents' perceptions of care-giving according to their children's diagnoses and/or reason for hospitalization. The conceptual framework that guided this research is a set of priniciples developed by the Institute for Family Centered Care (Hanson, Johnson, Jeppson, Thomas & Hall, 1994) and is based on the belief that the family members are a major source of strength and support for their child, are experts about their child, and want to care for and nurture their child. The five major concepts that form this framework are respect, information sharing, collaboration, family-to-family support and confidence building. For this study, a convenience sample of parents (n=50) was recruited from a 20 bed neurosciences unit in a pediatric tertiary level hospital over an eight week period. Data were collected by means of a revised 56 item, five subscale self-report Measure of the Processes of Care (MPOC-R) questionnaire (King, Rosenbaum & King, 1996), and a socio-demographic tool. Data were analyzed using descriptive and parametric statistics. The study's findings indicate that during a particular period of time, parents reflect the views of a relatively satisfied group of consumers who view the interpersonal aspects of care-giving on this particular neurosciences unit positively. The findings reveal no differences in parents' perceptions of the interpersonal aspects of care-giving according to their children's diagnoses and/or reason for hospitalization. Suggestions for enhancing family-centered care include educational strategies, clinical practice changes and administrative support. Future research initiatives are presented.

Thesis/Dissertation

application/pdf

2009-03-12

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http://hdl.handle.net/2429/5985

Nursing

University of British Columbia

UBCV

DSpace