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UBC Theses and Dissertations
Deciding what’s best for my child : factors that influence parents’ decisions about the care of technology-dependent children at home Bassingthwaighte, Carol Janet
Abstract
Over the past decade there has been an increase in the population of children who are technology-dependent and living at home. This has created new roles for parents who learn all aspects of their child's care, including procedures that have traditionally been within the professional's domain. In the process of caring for their child, parents make many decisions related to that care. The factors that influence parental decisions are likely different from those that influence nurses' decisions. Differences between parents and nurses regarding what is the "best care" for a child can result in conflict between them. The purpose of this study was to explore and describe the factors that parents perceived as influencing their decisions regarding the care of their technology-dependent child at home. A secondary analysis was performed on data that had been collected for a phenomenological study which explored the role of the nurse in the home care of children with complex health care needs. Transcripts from interviews with ten parents were analyzed, using an interpretivist paradigm and a symbolic interactionism perspective. Findings revealed that parental readiness for decision-making varied. When parents were first at home they appreciated assistance from nurses to help set up care routines. However, over time, all parents wished to be the decision-maker regarding their child's care. If nurses did not consult parents regarding decisions about their child's care, it created stress for parents or conflict with the nurses. When making decisions parents considered factors related to their child's medical condition or care needs, as well as their child's developmental stage. Parents also considered factors related to themselves, such as their previous experience, their underlying values, other family responsibilities, or their level of fatigue or stress. Finally, parents considered factors related to the environment, such as the parent-nurse relationship, the availability and type of supports, and the physical aspects of the home. Seldom did they consider one factor in isolation from others. Rather, a complex web of factors underlay most decisions, and individual factors influenced the resulting decision in various directions. Three key ideas from the findings are discussed in relation to the existing theoretical and research literature. As well, implications for nursing practice, education, research and program planning are presented.
Item Metadata
Title |
Deciding what’s best for my child : factors that influence parents’ decisions about the care of technology-dependent children at home
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Creator | |
Publisher |
University of British Columbia
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Date Issued |
1996
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Description |
Over the past decade there has been an increase in the population of
children who are technology-dependent and living at home. This has created
new roles for parents who learn all aspects of their child's care, including
procedures that have traditionally been within the professional's domain. In
the process of caring for their child, parents make many decisions related to
that care. The factors that influence parental decisions are likely different
from those that influence nurses' decisions. Differences between parents and
nurses regarding what is the "best care" for a child can result in conflict
between them.
The purpose of this study was to explore and describe the factors that
parents perceived as influencing their decisions regarding the care of their
technology-dependent child at home. A secondary analysis was performed on
data that had been collected for a phenomenological study which explored the
role of the nurse in the home care of children with complex health care
needs. Transcripts from interviews with ten parents were analyzed, using an
interpretivist paradigm and a symbolic interactionism perspective.
Findings revealed that parental readiness for decision-making varied.
When parents were first at home they appreciated assistance from nurses to
help set up care routines. However, over time, all parents wished to be the
decision-maker regarding their child's care. If nurses did not consult parents
regarding decisions about their child's care, it created stress for parents or
conflict with the nurses.
When making decisions parents considered factors related to their
child's medical condition or care needs, as well as their child's developmental
stage. Parents also considered factors related to themselves, such as their
previous experience, their underlying values, other family responsibilities, or their level of fatigue or stress. Finally, parents considered factors related to
the environment, such as the parent-nurse relationship, the availability and
type of supports, and the physical aspects of the home. Seldom did they
consider one factor in isolation from others. Rather, a complex web of factors
underlay most decisions, and individual factors influenced the resulting
decision in various directions.
Three key ideas from the findings are discussed in relation to the
existing theoretical and research literature. As well, implications for nursing
practice, education, research and program planning are presented.
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Extent |
4891857 bytes
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Genre | |
Type | |
File Format |
application/pdf
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Language |
eng
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Date Available |
2009-02-09
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Provider |
Vancouver : University of British Columbia Library
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Rights |
For non-commercial purposes only, such as research, private study and education. Additional conditions apply, see Terms of Use https://open.library.ubc.ca/terms_of_use.
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DOI |
10.14288/1.0087097
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URI | |
Degree | |
Program | |
Affiliation | |
Degree Grantor |
University of British Columbia
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Graduation Date |
1996-05
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Campus | |
Scholarly Level |
Graduate
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Aggregated Source Repository |
DSpace
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Item Media
Item Citations and Data
Rights
For non-commercial purposes only, such as research, private study and education. Additional conditions apply, see Terms of Use https://open.library.ubc.ca/terms_of_use.