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A descriptive study of the experiences of growing up with a sibling who has autism Jensen, Shirley Marie
Abstract
This study explores the range of experiences of growing up in a family where one of the children has autism. The experiences of the non-handicapped siblings, their emotional responses, and their coping methods were studied. This was an exploratory investigation in light of the rarity of research; an attempt to try to describe something of the significance of the experiences of siblings. A case study approach is employed using as primary participants three teen aged children with siblings who have autism. In depth interviews focus upon the primary participants to explore the dynamics and their subjective interpretations of the experience of growing up with their autistic brother or sister. The volunteer participants had lived with their handicapped sibling for at lest five years and had experienced no recent life traumas such as recent family deaths or parental separation. Each of the experiences described in this study is unique, describing the experiences of the primary participants from their own perspective. From theses experiences, common issues emerged including various forms of responsibility, restrictions, privacy, and acceptance. These issues are examined identifying some common themes as well as variations on the themes.
Item Metadata
Title |
A descriptive study of the experiences of growing up with a sibling who has autism
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Creator | |
Publisher |
University of British Columbia
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Date Issued |
1992
|
Description |
This study explores the range of experiences of growing
up in a family where one of the children has autism. The
experiences of the non-handicapped siblings, their emotional
responses, and their coping methods were studied. This was
an exploratory investigation in light of the rarity of
research; an attempt to try to describe something of the
significance of the experiences of siblings. A case study
approach is employed using as primary participants three
teen aged children with siblings who have autism. In depth
interviews focus upon the primary participants to explore
the dynamics and their subjective interpretations of the
experience of growing up with their autistic brother or
sister. The volunteer participants had lived with their
handicapped sibling for at lest five years and had
experienced no recent life traumas such as recent family
deaths or parental separation.
Each of the experiences described in this study is
unique, describing the experiences of the primary
participants from their own perspective. From theses
experiences, common issues emerged including various forms
of responsibility, restrictions, privacy, and acceptance.
These issues are examined identifying some common themes as
well as variations on the themes.
|
Extent |
4609120 bytes
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Genre | |
Type | |
File Format |
application/pdf
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Language |
eng
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Date Available |
2008-12-17
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Provider |
Vancouver : University of British Columbia Library
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Rights |
For non-commercial purposes only, such as research, private study and education. Additional conditions apply, see Terms of Use https://open.library.ubc.ca/terms_of_use.
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DOI |
10.14288/1.0054075
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URI | |
Degree | |
Program | |
Affiliation | |
Degree Grantor |
University of British Columbia
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Graduation Date |
1992-11
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Campus | |
Scholarly Level |
Graduate
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Aggregated Source Repository |
DSpace
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Item Media
Item Citations and Data
Rights
For non-commercial purposes only, such as research, private study and education. Additional conditions apply, see Terms of Use https://open.library.ubc.ca/terms_of_use.