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Fighting from the fringes : the decision-making process of mothers using complementary and alternative medicine in autism.

University of British Columbia

In this study a theoretical model “Fighting from the Fringes” was developed to help elucidate the decision-making process of CAM selection by parents of children with autism. Represented in this conceptual model are the processes of searching for answers, looking for alternatives and making choices. The mothers’ disenfranchisement and marginalization from conventional healthcare, stigmatization from society and the stress and isolation experienced, all prove pivotal to the decision-making process of CAM use in autism. By examining the narratives of the mothers who participated in the study, and utilizing a grounded theory approach to analysis the data, this theoretical model emerged. This model allows for an understanding of the thought processes behind mothers’ decisions to use CAM for their children with autism, what also emerges is an understanding of how the use of CAM allows them to maintain their self-identify as “good mothers”. Recommendations of the study offer suggestions that address the much needed support and education to families face with caring for and making treatment decisions for their autistic child.

Text

2012-10-17

Attribution-NonCommercial-NoDerivatives 4.0 International

http://hdl.handle.net/2429/43431

Nursing

University of British Columbia

UBCV

http://creativecommons.org/licenses/by-nc-nd/4.0/