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Engaging diverse patients in a diverse world : the development and preliminary evaluation of educational modules to support diversity in patient engagement research Michalak, Erin E.; Cheung, Iva W.; Willis, Elsy; Hole, Rachelle; Pomeroy, Beverley; Morton, Emma; Kanani, Sahil S.; Barnes, Steven J.
Abstract
Background: Current practices for engaging patients in patient-oriented research (POR) result in a narrow pool of patient perspectives being refected in POR. This project aims to address gaps in methodological knowledge to foster diversity in POR, through the co-design and evaluation of a series of educational modules for health researchers in British Columbia, Canada. Methods: Modules were co-created by a team of academic researchers and patient partners from hardly-reached communities. The modules are presented using the Tapestry Tool, an interactive, online educational platform. Our evaluation framework focused on engagement, content quality, and predicted behavior change. The User Engagement Scale short form (UES-SF) measured participants’ level of engagement with the modules. Survey evaluation items assessed the content within the modules and participants’ perceptions of how the modules will impact their behavior. Evaluation items modeled on the theory of planned behavior, administered before and after viewing the modules, assessed the impact of the modules on participants’ perceptions of diversity in POR. Results: Seventy-four health researchers evaluated the modules. Researchers’ engagement and ratings of module content were high. Subjective behavioral control over fostering diversity in POR increased signifcantly after viewing the modules. Conclusions: Our results suggest the modules may be an engaging way to provide health researchers with tools and knowledge to increase diversity in health research. Future studies are needed to investigate best practices for engaging with communities not represented in this pilot project, such as children and youth, Indigenous Peoples, and Black communities. While educational interventions represent one route to increasing diversity in POR, individual efforts must occur in tandem with high-level changes that address systemic barriers to engagement.
Item Metadata
Title |
Engaging diverse patients in a diverse world : the development and preliminary evaluation of educational modules to support diversity in patient engagement research
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Creator | |
Publisher |
BioMed Central
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Date Issued |
2023-07-07
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Description |
Background: Current practices for engaging patients in patient-oriented research (POR) result in a narrow pool of
patient perspectives being refected in POR. This project aims to address gaps in methodological knowledge to foster
diversity in POR, through the co-design and evaluation of a series of educational modules for health researchers in
British Columbia, Canada.
Methods: Modules were co-created by a team of academic researchers and patient partners from hardly-reached
communities. The modules are presented using the Tapestry Tool, an interactive, online educational platform. Our
evaluation framework focused on engagement, content quality, and predicted behavior change. The User Engagement Scale short form (UES-SF) measured participants’ level of engagement with the modules. Survey evaluation
items assessed the content within the modules and participants’ perceptions of how the modules will impact their
behavior. Evaluation items modeled on the theory of planned behavior, administered before and after viewing the
modules, assessed the impact of the modules on participants’ perceptions of diversity in POR.
Results: Seventy-four health researchers evaluated the modules. Researchers’ engagement and ratings of module
content were high. Subjective behavioral control over fostering diversity in POR increased signifcantly after viewing
the modules.
Conclusions: Our results suggest the modules may be an engaging way to provide health researchers with tools and
knowledge to increase diversity in health research. Future studies are needed to investigate best practices for engaging with communities not represented in this pilot project, such as children and youth, Indigenous Peoples, and Black
communities. While educational interventions represent one route to increasing diversity in POR, individual efforts
must occur in tandem with high-level changes that address systemic barriers to engagement.
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Subject | |
Genre | |
Type | |
Language |
eng
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Date Available |
2023-07-24
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Provider |
Vancouver : University of British Columbia Library
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Rights |
Attribution 4.0 International (CC BY 4.0)
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DOI |
10.14288/1.0434274
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URI | |
Affiliation | |
Citation |
Research Involvement and Engagement. 2023 Jul 07;9(1):47
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Publisher DOI |
10.1186/s40900-023-00455-0
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Peer Review Status |
Reviewed
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Scholarly Level |
Faculty; Researcher; Postdoctoral; Graduate
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Copyright Holder |
The Author(s)
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Rights URI | |
Aggregated Source Repository |
DSpace
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Item Media
Item Citations and Data
Rights
Attribution 4.0 International (CC BY 4.0)