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Mixed methods study exploring parent engagement in child health research in British Columbia Smith, Jennifer; Pike, Ian; Brussoni, Mariana; Tucker, Lori; Mâsse, Louise C.; Mah, Janet W. T.; Boudreau, Ainsley; Mount, Dawn; Bonaguro, Russell; Glegg, Stephanie; et al.

Abstract

Objectives The objective of this study was to explore parent perspectives of and interest in an interactive knowledge translation platform called Child-Sized KT that proposes to catalyse the collaboration of patients, families, practitioners and researchers in patient-oriented research at British Columbia Children’s Hospital (BCCH). Methods An explanatory sequential mixed methods design was used over 1 year. Over 500 parents across BC completed an online survey, including a subsample of 102 parents who had accessed care at BCCH within the past 2 years. The survey explored parent perspectives about the value of their engagement at all stages of the research process and their interest in and concerns with using an online platform. Following the online survey, two focus groups were held with parents in the Vancouver area to explore themes emerging from the survey. Results Parents expressed keen interest in engaging in research at BCCH. Parents perceived benefit from their input at all stages of the research process; however, they were most interested in helping to identify the problem, develop the research question and share the results. Although parents preferred online participation, they had concerns about protecting the privacy of their child’s information. Conclusions Parents see value in their involvement in all stages of child health research at BCCH. Their input suggests that Child-Sized KT, a hypothetical online platform, would facilitate meaningful stakeholder engagement in child health research, but should offer a customised experience and ensure the highest standard of data privacy and protection.

Item Metadata

Title
Mixed methods study exploring parent engagement in child health research in British Columbia
Creator
Smith, Jennifer; Pike, Ian; Brussoni, Mariana; Tucker, Lori; Mâsse, Louise C.; Mah, Janet W. T.; Boudreau, Ainsley; Mount, Dawn; Bonaguro, Russell; Glegg, Stephanie; Amed, Shazhan
Contributor
B.C. Injury Research and Prevention Unit; Children's Hospital (Vancouver, B.C.). Research Institute; Children's Hospital (Vancouver, B.C.)
Publisher
BMJ Open
Date Issued
2019-06-01
Description
Objectives The objective of this study was to explore parent perspectives of and interest in an interactive knowledge translation platform called Child-Sized KT that proposes to catalyse the collaboration of patients, families, practitioners and researchers in patient-oriented research at British Columbia Children’s Hospital (BCCH). Methods An explanatory sequential mixed methods design was used over 1 year. Over 500 parents across BC completed an online survey, including a subsample of 102 parents who had accessed care at BCCH within the past 2 years. The survey explored parent perspectives about the value of their engagement at all stages of the research process and their interest in and concerns with using an online platform. Following the online survey, two focus groups were held with parents in the Vancouver area to explore themes emerging from the survey. Results Parents expressed keen interest in engaging in research at BCCH. Parents perceived benefit from their input at all stages of the research process; however, they were most interested in helping to identify the problem, develop the research question and share the results. Although parents preferred online participation, they had concerns about protecting the privacy of their child’s information. Conclusions Parents see value in their involvement in all stages of child health research at BCCH. Their input suggests that Child-Sized KT, a hypothetical online platform, would facilitate meaningful stakeholder engagement in child health research, but should offer a customised experience and ensure the highest standard of data privacy and protection.
Subject
Children and youth (0-19); Adults (20-64)
Genre
Article
Type
Text
Language
eng
Date Available
2021-12-08
Provider
Vancouver : University of British Columbia Library
Rights
Attribution-NonCommercial-NoDerivatives 4.0 International
DOI
10.14288/1.0404539
URI
http://hdl.handle.net/2429/80428
Affiliation
Pediatrics, Department of; Population and Public Health (SPPH), School of; Psychiatry, Department of; Medicine, Faculty of; Other UBC
Citation
Smith J, Pike I, Brussoni M, et al. Mixed methods study exploring parent engagement in child health research in British Columbia. BMJ Open 2019;9:e025404.
Publisher DOI
10.1136/bmjopen-2018-025404
Peer Review Status
Reviewed
Scholarly Level
Faculty; Researcher
Rights URI
http://creativecommons.org/licenses/by-nc-nd/4.0/
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Attribution-NonCommercial-NoDerivatives 4.0 International