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Time to decide about risk-reducing mastectomy: A case series of BRCA1/2 gene mutation carriers McCullum, Mary; Bottorff, J. L. (Joan L.), 1950-; Kelly, Mary T.; Kieffer, Stephanie A.; Balneaves, Lynda G.
Abstract
Background: The purpose of this research was to explore women's decision-making experiences related to the option of risk-reducing mastectomy (RM), using a case series of three women who are carriers of a BRCA1/2 gene mutation. Methods: Data was collected in a pilot study that assessed the response of women to an information booklet about RM and decision-making support strategies. A detailed analysis of three women's descriptions of their decision-making processes and outcomes was conducted. Results: All three women were carriers of a BRCA1/2 gene mutation and, although undecided, were leaning towards RM when initially assessed. Each woman reported a different RM decision outcome at last follow-up. Case #1 decided not to have RM, stating that RM was "too radical" and early detection methods were an effective strategy for dealing with breast cancer risk. Case #2 remained undecided about RM and, over time, she became less prepared to make a decision because she felt she did not have sufficient information about surgical effects. Case #3 had undergone RM by the time of her second follow-up interview and reported that she felt "a load off (her) mind now". Conclusion: RM decision making may shift over time and require decision support over an extended period.
Item Metadata
Title |
Time to decide about risk-reducing mastectomy: A case series of BRCA1/2 gene mutation carriers
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Creator | |
Publisher |
BioMed Central
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Date Issued |
2007-03-06
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Description |
Background:
The purpose of this research was to explore women's decision-making experiences related to the option of risk-reducing mastectomy (RM), using a case series of three women who are carriers of a BRCA1/2 gene mutation.
Methods:
Data was collected in a pilot study that assessed the response of women to an information booklet about RM and decision-making support strategies. A detailed analysis of three women's descriptions of their decision-making processes and outcomes was conducted.
Results:
All three women were carriers of a BRCA1/2 gene mutation and, although undecided, were leaning towards RM when initially assessed. Each woman reported a different RM decision outcome at last follow-up. Case #1 decided not to have RM, stating that RM was "too radical" and early detection methods were an effective strategy for dealing with breast cancer risk. Case #2 remained undecided about RM and, over time, she became less prepared to make a decision because she felt she did not have sufficient information about surgical effects. Case #3 had undergone RM by the time of her second follow-up interview and reported that she felt "a load off (her) mind now".
Conclusion:
RM decision making may shift over time and require decision support over an extended period.
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Genre | |
Type | |
Language |
eng
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Date Available |
2016-02-04
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Provider |
Vancouver : University of British Columbia Library
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Rights |
Attribution 4.0 International (CC BY 4.0)
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DOI |
10.14288/1.0223969
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URI | |
Affiliation | |
Citation |
BMC Women's Health. 2007 Mar 06;7(1):3
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Publisher DOI |
10.1186/1472-6874-7-3
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Peer Review Status |
Reviewed
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Scholarly Level |
Faculty
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Copyright Holder |
McCullum et al.
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Rights URI | |
Aggregated Source Repository |
DSpace
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Item Media
Item Citations and Data
Rights
Attribution 4.0 International (CC BY 4.0)