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Neuroethics, confidentiality, and a cultural imperative in early onset Alzheimer disease: a case study with a First Nation population Stevenson, Shaun; Beattie, B L; Vedan, Richard; Dwosh, Emily; Bruce, Lindsey; Illes, Judy

Abstract

The meaningful consideration of cultural practices, values and beliefs is a necessary component in the effective translation of advancements in neuroscience to clinical practice and public discourse. Society’s immense investment in biomedical science and technology, in conjunction with an increasingly diverse socio-cultural landscape, necessitates the study of how potential discoveries in neurodegenerative diseases such as Alzheimer disease are perceived and utilized across cultures. Building on the work of neuroscientists, ethicists and philosophers, we argue that the growing field of neuroethics provides a pragmatic and constructive pathway to guide advancements in neuroscience in a manner that is culturally nuanced and relevant. Here we review a case study of one issue in culturally oriented neuroscience research where it is evident that traditional research ethics must be broadened and the values and needs of diverse populations considered for meaningful and relevant research practices. A global approach to neuroethics has the potential to furnish critical engagement with cultural considerations of advancements in neuroscience.

Item Metadata

Title
Neuroethics, confidentiality, and a cultural imperative in early onset Alzheimer disease: a case study with a First Nation population
Creator
Stevenson, Shaun; Beattie, B L; Vedan, Richard; Dwosh, Emily; Bruce, Lindsey; Illes, Judy
Publisher
BioMed Central
Date Issued
2013-10-16
Description
The meaningful consideration of cultural practices, values and beliefs is a necessary component in the effective translation of advancements in neuroscience to clinical practice and public discourse. Society’s immense investment in biomedical science and technology, in conjunction with an increasingly diverse socio-cultural landscape, necessitates the study of how potential discoveries in neurodegenerative diseases such as Alzheimer disease are perceived and utilized across cultures. Building on the work of neuroscientists, ethicists and philosophers, we argue that the growing field of neuroethics provides a pragmatic and constructive pathway to guide advancements in neuroscience in a manner that is culturally nuanced and relevant. Here we review a case study of one issue in culturally oriented neuroscience research where it is evident that traditional research ethics must be broadened and the values and needs of diverse populations considered for meaningful and relevant research practices. A global approach to neuroethics has the potential to furnish critical engagement with cultural considerations of advancements in neuroscience.
Subject
Confidentiality; Global health neuroethics; Biomedical ethics; First nations; Research ethics; Early Onset Familial Alzheimer Disease; Community-based research
Genre
Article
Type
Text
Language
eng
Date Available
2015-10-24
Provider
Vancouver : University of British Columbia Library
Rights
Attribution 4.0 International (CC BY 4.0)
DOI
10.14288/1.0135717
URI
http://hdl.handle.net/2429/55090
Affiliation
Medicine, Department of; Medicine, Faculty of; Neurology, Division of; Social Work, School of; Other UBC; Arts, Faculty of
Citation
Philosophy, Ethics, and Humanities in Medicine. 2013 Oct 16;8(1):15
Publisher DOI
10.1186/1747-5341-8-15
Peer Review Status
Reviewed
Scholarly Level
Faculty
Copyright Holder
Stevenson et al.; licensee BioMed Central Ltd.
Rights URI
http://creativecommons.org/licenses/by/4.0/
Aggregated Source Repository
DSpace

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Rights

Attribution 4.0 International (CC BY 4.0)