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Research in human genetics : promise, pitfalls and policy challenges Baird, Patricia A.

Abstract

In this paper, I address three important questions regarding genetic research. They are: 1. What are the key responsibilities regarding genetic research of the scientific community, the media, voluntary health agencies, and individuals who are affected? 2. Who should determine the allocation of resources to genetic research, including the proportion to go to basic versus clinical, and to incorporation of findings into clinical practice? 3. What are the major ethical and social issues raised by application of increased genetic knowledge, and who should be responsible for addressing them? Clearly, anyone of these topics entails far more complexity than can be dealt with properly in a brief discussion paper, and I will only touch on a few of many important aspects in answer to each of the questions.

Item Metadata

Title
Research in human genetics : promise, pitfalls and policy challenges
Alternate Title
HPRU 95:3D
Creator
Baird, Patricia A.
Contributor
University of British Columbia. Centre for Health Services and Policy Research
Publisher
Centre for Health Services and Policy Research (CHSPR)
Date Issued
1995-02
Description
In this paper, I address three important questions regarding genetic research. They are: 1. What are the key responsibilities regarding genetic research of the scientific community, the media, voluntary health agencies, and individuals who are affected? 2. Who should determine the allocation of resources to genetic research, including the proportion to go to basic versus clinical, and to incorporation of findings into clinical practice? 3. What are the major ethical and social issues raised by application of increased genetic knowledge, and who should be responsible for addressing them? Clearly, anyone of these topics entails far more complexity than can be dealt with properly in a brief discussion paper, and I will only touch on a few of many important aspects in answer to each of the questions.
Subject
Genetic research; Research, genetic
Genre
Report
Type
Text
Language
eng
Date Available
2014-09-10
Provider
Vancouver : University of British Columbia Library
Rights
Attribution-NonCommercial-NoDerivs 2.5 Canada
DOI
10.14288/1.0048488
URI
http://hdl.handle.net/2429/50341
Affiliation
Medicine, Faculty of; Population and Public Health (SPPH), School of
Peer Review Status
Unreviewed
Scholarly Level
Faculty
Rights URI
http://creativecommons.org/licenses/by-nc-nd/2.5/ca/
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DSpace

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Attribution-NonCommercial-NoDerivs 2.5 Canada