UBC Faculty Research and Publications

Research in human genetics : promise, pitfalls and policy challenges Baird, Patricia A.


In this paper, I address three important questions regarding genetic research. They are: 1. What are the key responsibilities regarding genetic research of the scientific community, the media, voluntary health agencies, and individuals who are affected? 2. Who should determine the allocation of resources to genetic research, including the proportion to go to basic versus clinical, and to incorporation of findings into clinical practice? 3. What are the major ethical and social issues raised by application of increased genetic knowledge, and who should be responsible for addressing them? Clearly, anyone of these topics entails far more complexity than can be dealt with properly in a brief discussion paper, and I will only touch on a few of many important aspects in answer to each of the questions.

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