Occupational and Financial Setbacks in Caregivers of People with Colorectal Cancer: Considerations for Caregiver-Reported Outcomes
department or school: Applied Science, Faculty of
department or school: Medicine, Faculty of
department or school: Pharmaceutical Sciences, Faculty of
department or school: Non UBC
department or school: Nursing, School of
data provider: DSpace
identifier citation: Current Oncology 29 (11): 8180-8196 (2022)
contributor: BC Cancer Agency
creator: Howard, A. Fuchsia
creator: Lambert, Leah Kimberley
creator: Beck, Scott M.
creator: Torrejón, María-José
creator: Kelly, Mary T.
creator: McKenzie, Michael
creator: Thorne, Sally E. (Sally Elizabeth), 1951-
creator: Porcino, Antony Joseph
creator: De Vera, Mary
creator: Wolff, Angela C.
creator: Hedges, Penelope
issued: 2025-01-24T16:05:30Z
issued: 2022-10-29
description: Family caregivers of patients with cancer provide substantial physical, emotional, and functional care throughout the cancer trajectory. While caregiving can create employment and financial challenges, there is insufficient evidence to inform the development of caregiver-reported outcomes (CROs) that assess these experiences. The study purpose was to describe the occupational and financial consequences that were important to family caregivers of a patient with colorectal cancer (CRC) in the context of public health care, which represent potential considerations for CROs. In this qualitative Interpretive Description study, we analyzed interview data from 78 participants (25 caregivers, 37 patients, and 16 healthcare providers). Our findings point to temporary and long-term occupational and financial setbacks in the context of CRC. Caregiving for a person with CRC involved managing occupational implications, including (1) revamping employment arrangements, and (2) juggling work, family, and household demands. Caregiver financial struggles included (1) responding to financial demands at various stages of life, and (2) facing the spectre of lifelong expenses. Study findings offer novel insight into the cancer-related occupational and financial challenges facing caregivers, despite government-funded universal health care. Further research is warranted to develop CRO measures that assess the multifaceted nature of these challenges.
aggregated CHO: https://circle.library.ubc.ca/rest/handle/2429/90199
note: Citation: Howard, A.F.; Lynch, K.;Thorne, S.; Porcino, A.; Lambert, L.;De Vera, M.A.; Wolff, A.C.;Hedges, P.; Beck, S.M.;Torrejón, M.-J.; et al. Occupationaland Financial Setbacks in Caregiversof People with Colorectal Cancer:Considerations for Caregiver-Reported Outcomes. Curr. Oncol.2022, 29, 8180–8196. https://doi.org/10.3390/curroncol29110646Received: 14 October 2022Accepted: 28 October 2022Published: 29 October 2022Publisher’s Note: MDPI stays neutralwith regard to jurisdictional claims inpublished maps and institutional affil-iations.Copyright: © 2022 by the authors.Licensee MDPI, Basel, Switzerland.This article is an open access articledistributed under the terms andconditions of the Creative CommonsAttribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).ArticleOccupational and Financial Setbacks in Caregivers of People withColorectal Cancer: Considerations for Caregiver-Reported OutcomesA. Fuchsia Howard 1,* , Kelsey Lynch 1, Sally Thorne 1 , Antony Porcino 2, Leah Lambert 1,2, Mary A. De Vera 3,Angela C. Wolff 4, Penelope Hedges 2, Scott M. Beck 1,2 , María-José Torrejón 2, Mary T. Kelly 1and Michael McKenzie 2,51 School of Nursing, The University of British Columbia, Vancouver, BC V6T 2B5, Canada2 BC Cancer, Vancouver, BC V5Z 4C2 Canada3 Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, BC V6T 1Z3, Canada4 School of Nursing, Trinity Western University, Langley, BC V2Y 1Y1, Canada5 Faculty of Medicine, The University of British Columbia, Vancouver, BC V6T 1Z3, Canada* Correspondence: fuchsia.howard@ubc.caAbstract: Family caregivers of patients with cancer provide substantial physical, emotional, andfunctional care throughout the cancer trajectory. While caregiving can create employment andfinancial challenges, there is insufficient evidence to inform the development of caregiver-reportedoutcomes (CROs) that assess these experiences. The study purpose was to describe the occupationaland financial consequenc…
has type: Article
is shown at: 10.14288/1.0447834
language: eng
peer review status: Reviewed
provider: Vancouver : University of British Columbia Library
publisher: Multidisciplinary Digital Publishing Institute
publisher DOI: 10.3390/curroncol29110646
rights: CC BY 4.0
rights URI: https://creativecommons.org/licenses/by/4.0/
scholar level: Faculty
scholar level: Researcher
subject: caregiver
subject: family
subject: supportive care needs
subject: employment
subject: occupation
subject: financial costs
subject: economic costs
subject: qualitative research
subject: caregiver reported outcomes
subject: patient reported outcomes
subject: colorectal cancer
subject: oncology
subject: psychosocial
type: Text
identifier URI: http://hdl.handle.net/2429/90199