Parkinson’s disease: current assessment methods and wearable devices for evaluation of movement disorder motor symptoms - a patient and healthcare professional perspective
department or school: Arts, Faculty of
department or school: Non UBC
department or school: Psychology, Department of
data provider: DSpace
identifier citation: BMC Neurology. 2020 Nov 18;20(1):419
rights copyright: The Author(s)
creator: AlMahadin, Ghayth
creator: Lotfi, Ahmad
creator: Zysk, Eva
creator: Siena, Francesco L
creator: Carthy, Marie M
creator: Breedon, Philip
issued: 2020-11-19T19:33:23Z
issued: 2020-11-18
description: Background: Parkinson’s disease is the second most common long-term chronic, progressive, neurodegenerative disease, affecting more than 10 million people worldwide. There has been a rising interest in wearable devices for evaluation of movement disorder diseases such as Parkinson’s disease due to the limitations in current clinic assessment methods such as Unified Parkinson’s Disease Rating Scale (UPDRS) and the Hoehn and Yahr (HY) scale. However, there are only a few commercial wearable devices available, which, in addition, have had very limited adoption and implementation. This inconsistency may be due to a lack of users’ perspectives in terms of device design and implementation. This study aims to identify the perspectives of healthcare professionals and patients linked to current assessment methods and to identify preferences, and requirements of wearable devices. Methods: This was a qualitative study using semi-structured interviews followed by focus groups. Transcripts from sessions were analysed using an inductive thematic approach. Results: It was noted that the well-known assessment process such as Unified Parkinson’s Disease Rating Scale (UPDRS) was not used routinely in clinics since it is time consuming, subjective, inaccurate, infrequent and dependent on patients’ memories. Participants suggested that objective assessment methods are needed to increase the chance of effective treatment. The participants’ perspectives were positive toward using wearable devices, particularly if they were involved in early design stages. Patients emphasized that the devices should be comfortable, but they did not have any concerns regarding device visibility or data privacy transmitted over the internet when it comes to their health. In terms of wearing a monitor, the preferable part of the body for all participants was the wrist. Healthcare professionals stated a need for an economical solution that is easy to interpret. Some design aspects identified by patients inclu…
aggregated CHO: https://circle.library.ubc.ca/rest/handle/2429/76548
note: AlMahadin et al. BMC Neurology (2020) 20:419 https://doi.org/10.1186/s12883-020-01996-7RESEARCH ARTICLE Open AccessParkinson’s disease: current assessmentmethods and wearable devices forevaluation of movement disorder motorsymptoms - a patient and healthcareprofessional perspectiveGhayth AlMahadin1, Ahmad Lotfi1, Eva Zysk2, Francesco Luke Siena3, Marie Mc Carthy4 andPhilip Breedon1*AbstractBackground: Parkinson’s disease is the second most common long-term chronic, progressive, neurodegenerativedisease, affecting more than 10 million people worldwide. There has been a rising interest in wearable devices forevaluation of movement disorder diseases such as Parkinson’s disease due to the limitations in current clinicassessment methods such as Unified Parkinson’s Disease Rating Scale (UPDRS) and the Hoehn and Yahr (HY) scale.However, there are only a few commercial wearable devices available, which, in addition, have had very limitedadoption and implementation. This inconsistency may be due to a lack of users’ perspectives in terms of devicedesign and implementation. This study aims to identify the perspectives of healthcare professionals and patientslinked to current assessment methods and to identify preferences, and requirements of wearable devices.Methods: This was a qualitative study using semi-structured interviews followed by focus groups. Transcripts fromsessions were analysed using an inductive thematic approach.Results: It was noted that the well-known assessment process such as Unified Parkinson’s Disease Rating Scale(UPDRS) was not used routinely in clinics since it is time consuming, subjective, inaccurate, infrequent and dependenton patients’ memories. Participants suggested that objective assessment methods are needed to increase the chanceof effective treatment. The participants’ perspectives were positive toward using wearable devices, particularly if theywere involved in early design stages. Patients emphasized that the devices should be comfortable, b…
has type: Article
is shown at: 10.14288/1.0395004
language: eng
peer review status: Reviewed
provider: Vancouver : University of British Columbia Library
publisher: BioMed Central
publisher DOI: 10.1186/s12883-020-01996-7
rights: Attribution 4.0 International (CC BY 4.0)
rights URI: http://creativecommons.org/licenses/by/4.0/
scholar level: Faculty
subject: Parkinson’s disease
subject: Focus groups
subject: Interviews
subject: Healthcare professionals
subject: Patients
subject: Wearable devices
subject: Qualitative analysis
subject: Preferences
type: Text
identifier URI: http://hdl.handle.net/2429/76548