Patient outcomes of genetic counseling : assessing the impact of different approaches to family history collection
department or school: Medicine, Faculty of
department or school: Medical Genetics, Department of
department or school: Psychiatry, Department of
data provider: DSpace
alternative: Outcomes of family history collection method
identifier citation: Slomp C, Morris E, Inglis A, Lehman A, Austin J. Patient outcomes of genetic counseling: assessing the impact of different approaches to family history collection. Clinical Genetics, 2018, 93(4): 830-6.
creator: Slomp, Caitlin
creator: Morris, Emily
creator: Inglis, Angela
creator: Lehman, Anna M.
creator: Austin, Jehannine
issued: 2018-12-13T17:54:07Z
issued: 2017-11-14
description: No studies have evaluated whether different modalities for collection of family history data influence patient outcomes of genetic counseling. We retrospectively compared outcomes of genetic counseling between patients whose family history (Fhx) was collected: a) via telephone prior to their appointment (FhxPrior), or b) during the appointment (FhxDuring). We used a psychiatric genetic counseling clinic database, where information about demographics and Fhx timing is recorded and patients complete the Genetic Counseling Outcomes Scale (GCOS, measuring empowerment) and Illness Management Self-Efficacy Scale (IMSES) immediately prior to (T1) and one-month after their appointment (T2). We used ANCOVA to evaluate the effect of Fhx method on patient outcomes at T2. Complete data were available for 240 patients and were used for analysis (FhxPrior, n=206; FhxDuring, n=34). GCOS and IMSES scores increased from T1-T2 (p<0.0005, and p=0.004, respectively). Though there was no difference between groups for GCOS (p=0.412), T2 IMSES scores were significantly higher for FhxPrior than FhxDuring after controlling for T1 scores (p=0.011). Our data suggest that obtaining Fhx via telephone prior to genetic counseling may lead to greater increases in patient self-efficacy as compared to obtaining Fhx during the genetic counseling appointment.
aggregated CHO: https://circle.library.ubc.ca/rest/handle/2429/68067
note: Title: Patient outcomes of genetic counseling: assessing the impact of different approaches to family history collection Running title: Outcomes of family history collection method Caitlin Slomp, MSc1, Emily Morris, MSc1, 2, Angela Inglis, MSc1, 2, Anna Lehman, MA, MD2, Jehannine Austin, MSc, PhD1, 2 1Department of Psychiatry, and 2Department of Medical Genetics, University of British Columbia, Vancouver, Canada Corresponding author: Jehannine Austin, UBC Departments of Psychiatry and Medical Genetics Rm A3-112, 3rd Floor, CFRI Translational Lab Building 938 W28th Ave, Vancouver, BC V5Z 4H4, Canada Tel.: +1 604 875 2000x5943 fax: +1 604 875 3871 e-mail: jehannine.austin@ubc.ca All authors declare no conflicts of interest Slomp et al. Outcomes of family history collection method 2 ABSTRACT No studies have evaluated whether different modalities for collection of family history data influence patient outcomes of genetic counseling. We retrospectively compared outcomes of genetic counseling between patients whose family history (Fhx) was collected: a) via telephone prior to their appointment (FhxPrior), or b) during the appointment (FhxDuring). We used a psychiatric genetic counseling clinic database, where information about demographics and Fhx timing is recorded and patients complete the Genetic Counseling Outcomes Scale (GCOS, measuring empowerment) and Illness Management Self-Efficacy Scale (IMSES) immediately prior to (T1) and one-month after their appointment (T2). We used ANCOVA to evaluate the effect of Fhx method on patient outcomes at T2. Complete data were available for 240 patients and were used for analysis (FhxPrior, n=206; FhxDuring, n=34). GCOS and IMSES scores increased from T1-T2 (p<0.0005, and p=0.004, respectively). Though there was no difference between groups for GCOS (p=0.412), T2 IMSES scores were significantly higher for FhxPrior than FhxDuring after controlling for T1 scores (p=0.011). Our data suggest that obtaining Fhx via telephone prior to …
has type: Article
has type: Postprint
is shown at: 10.14288/1.0375727
language: eng
peer review status: Reviewed
provider: Vancouver : University of British Columbia Library
rights: Attribution-NonCommercial-NoDerivatives 4.0 International
rights URI: http://creativecommons.org/licenses/by-nc-nd/4.0/
scholar level: Faculty
scholar level: Graduate
subject: PROMS
subject: GCOS
subject: Genetic counseling outcomes scale
subject: Self-efficacy
subject: Empowerment
subject: Naturalistic study
type: Text
identifier URI: http://hdl.handle.net/2429/68067