http://dx.doi.org/10.14288/1.0448499
department or school: Medicine, Department of
department or school: Obstetrics and Gynaecology, Department of
data provider: DSpace
degree campus: UBCV
creator: Allaire-Stacey, Genevieve Rose
issued: 2025-04-23T14:25:40Z
issued: 2025
related degree: Master of Science - MSc
degree grantor: University of British Columbia
description: More advanced and aggressive treatment for gynecological cancer leads to greater impacts on survivors’ quality of life, including sexual health, which is often overlooked. Indeed, cancer treatments have substantial effects on survivors’ sexual functioning and well-being, with most experiencing sexual difficulties as a result. These sexual difficulties can cause major distress and have significant impacts on the psychological well-being of survivors. There are few sexual health resources adapted to this population with unique needs. Therefore, the first 2 aims of this thesis are (1) to understand the lived realities of gynecological cancer survivors about sex after cancer, and (2) to adapt an existing online platform (eSense) delivering therapy to treat sexual difficulties to create eSense-Cancer, a new platform tailored to the needs and experiences of gynecological cancer survivors. Six patient partners were recruited to review the modules within eSense and provide written feedback regarding the changes required to better reflect their experience with sexual concerns and cancer. Once completed, we met over 3 sessions to further discuss their experiences and concerns regarding sexuality after cancer treatments as well as the necessary edits that would make eSense-Cancer more accessible and better reflective of the cancer experience. Our team, consisting of two research assistants and myself, then carried out a thematic analysis of the insights collected throughout the collaborative work to make concrete adaptations to the intervention along with registered psychologists, gynecological oncologists, a web developer, and a graphic illustrator. The third objective focused on creating a knowledge translation toolkit to disseminate the insights gleaned from the first phase of this thesis. The recommendations obtained during the patient engagement were identified as being applicable across a multitude of contexts and could serve to educate other healthcare providers who see…
aggregated CHO: https://circle.library.ubc.ca/rest/handle/2429/90718
note: USING PATIENT ENGAGEMENT AS A STRATEGY FOR ADAPTING AN ONLINE DIGITAL HEALTH TOOL FOR GYNECOLOGICAL CANCER SURVIVORS WITH SEXUAL DIFFICULTIES AND THE DISSEMINATION OF THE INSIGHTS GAINED FROM OUR COLLABORATION WITH PATIENT PARTNERS by Geneviève Rose Allaire-Stacey BA, McGill University, 2022 A THESIS SUBMITTED IN PARTIAL FULFILLMENT OF THE REQUIREMENTS FOR THE DEGREE OF MASTER OF SCIENCE in THE FACULTY OF GRADUATE AND POSTDOCTORAL STUDIES (Women+ and Children’s Health Sciences) THE UNIVERSITY OF BRITISH COLUMBIA (Vancouver) April 2025 © Geneviève Rose Allaire-Stacey, 2025 ii The following individuals certify that they have read, and recommend to the Faculty of Graduate and Postdoctoral Studies for acceptance, the thesis entitled: Using Patient Engagement as a Strategy for Adapting an Online Digital Health Tool for Gynecological Cancer Survivors with Sexual Difficulties and the Dissemination of The Insights Gained from our Collaboration with Patient Partners submitted by Geneviève Rose Allaire-Stacey in partial fulfilment of the requirements for the degree of Master of Science in Women+ and Children’s Health Sciences Examining Committee: Dr. Lori Brotto, Professor, Obstetrics and Gynecology, UBC Supervisor Dr. Katrina Bouchard, Assistant Professor, Obstetrics and Gynecology, UBC Supervisory Committee Member Dr. Lesa Dawson, MD, FRCSC Clinical Associate Professor, Obstetrics and Gynecology, UBC and Gynecologic Oncology, VGH Supervisory Committee Member Dr. Fuchsia Howard, School of Nursing, UBC Additional Examiner Additional Supervisory Committee Members: Dr. Geoffrey Cundiff, MD, Professor, Obstetrics and Gynecology, UBC Supervisory Committee Member iii Abstract More advanced and aggressive treatment for gynecological cancer leads to greater impacts on survivors’ quality of life, including sexual health, which is often overlooked. Indeed, cancer treatments have substantial effects on survivors’ sexual functioning and well-being, with most experiencing sexual difficul…
has type: Thesis/Dissertation
date issued: 2025-05
is shown at: 10.14288/1.0448499
language: eng
degree discipline: Women+ and Children’s Health Sciences
provider: Vancouver : University of British Columbia Library
publisher: University of British Columbia
rights: Attribution-NonCommercial-NoDerivatives 4.0 International
rights URI: http://creativecommons.org/licenses/by-nc-nd/4.0/
scholar level: Graduate
contributor: Brotto, Lori A.
title: Using patient engagement as a strategy for adapting an online digital health tool for gynecological cancer survivors with sexual difficulties and the dissemination of the insights gained from our collaboration with patient partners
type: Text
identifier URI: http://hdl.handle.net/2429/90718