Do patients with endometriosis receive respectful care? : experience of care among patients with endometriosis in British Columbia
department or school: Applied Science, Faculty of
department or school: Nursing, School of
data provider: DSpace
degree campus: UBCV
creator: McKay, Emily
issued: 2023-04-20T20:37:19Z
issued: 2023
related degree: Master of Science in Nursing - MSN
degree grantor: University of British Columbia
description: Background: Patients with endometriosis experience a high symptom burden and decreased quality of life. There are known provider education gaps regarding detection and diagnosis of endometriosis. Many patients with endometriosis navigate the healthcare system for years before they are diagnosed. Racialized patients face additional barriers when navigating the healthcare system, including difficulty finding a healthcare provider who will validate their experience of pain. Purpose: The purpose of this study was to learn if patients with endometriosis report experiences of respect and autonomy on their journey to receiving a diagnosis of endometriosis. Methods: This study was conducted as a cross-sectional study. Validated survey tools to measure respect and autonomy in childbirth were adapted for use in patients with endometriosis. A patient research advisory board was composed to review the accessibility of the survey. Participants were primarily recruited through the British Columbia Women’s Hospital Chronic Pelvic Pain and Endometriosis Clinic. Other organizations with increased sample diversity were also included to increase the diversity of the sample. Results: The mean score of respectful care was 48.41 (SD = 5.01), indicative of low overall respect. The mean score for total autonomy is indicative of low autonomy with a mean of 24.10 (SD = 8.35). While a diverse sample was included (25% non-white, 12.6% gender-diverse, 28.6% non-heterosexual), the sample size in each group did not generate significant power to stratify the results based on sociodemographic variables like race, gender identity or sexual orientation. Implications: Further research is needed to replicate this study with a larger sample size to detect these potential differences in care experiences amongst racialized and gender-diverse populations. Overall, patients with endometriosis are disrespected and have few opportunities to demonstrate autonomy in their care. Education to increase awareness a…
aggregated CHO: https://circle.library.ubc.ca/rest/handle/2429/84371
note: DO PATIENTS WITH ENDOMETRIOSIS RECEIVE RESPECTFUL CARE? EXPERIENCE OF CARE AMONG PATIENTS WITH ENDOMETRIOSIS IN BRITISH COLUMBIA by Emily McKay B.Sc.N., University of Western Ontario, 2019A THESIS SUBMITTED IN PARTIAL FULFILLMENT OF THE REQUIREMENTS FOR THE DEGREE OF MASTER OF SCIENCE IN NURSING in THE FACULTY OF GRADUATE AND POSTDOCTORAL STUDIES THE UNIVERSITY OF BRITISH COLUMBIA (Vancouver) April 2023 © Emily McKay, 2023 ii The following individuals certify that they have read, and recommend to the Faculty of Graduate and Postdoctoral Studies for acceptance, a thesis entitled: DO PATIENTS WITH ENDOMETRIOSIS RECEIVE RESPECTFUL CARE? EXPERIENCE OF CARE AMONG PATIENTS WITH ENDOMETRIOSIS IN BRITISH COLUMBIA submitted by Emily McKay in partial fulfillment of the requirements for the degree of Master of Science in Nursing Examining Committee: Dr. Suzanne H. Campbell, Professor, School of Nursing, UBC Co-Supervisor Dr. Saraswathi Vedam, Professor, School of Midwifery, UBC Co-Supervisor Dr. Paul Yong, Associate Professor, School of Medicine, UBC Supervisory Committee Member Dr. Emmanuela Ojukwu, Assistant Professor, School of Nursing, UBC Supervisory Committee Member iii Abstract Background: Patients with endometriosis experience a high symptom burden and decreased quality of life. There are known provider education gaps regarding detection and diagnosis of endometriosis. Many patients with endometriosis navigate the healthcare system for years before they are diagnosed. Racialized patients face additional barriers when navigating the healthcare system, including difficulty finding a healthcare provider who will validate their experience of pain. Purpose: The purpose of this study was to learn if patients with endometriosis report experiences of respect and autonomy on their journey to receiving a diagnosis of endometriosis. Methods: This study was conducted as a cross-sectional study. Validated survey tools to measure respect and autonomy in childbirth were adapted for u…
has type: Thesis/Dissertation
date issued: 2023-05
is shown at: 10.14288/1.0431307
language: eng
degree discipline: Nursing
provider: Vancouver : University of British Columbia Library
publisher: University of British Columbia
rights: Attribution-NonCommercial-NoDerivatives 4.0 International
rights URI: http://creativecommons.org/licenses/by-nc-nd/4.0/
scholar level: Graduate
contributor: Campbell, Suzanne Hetzel
contributor: Vedam, Saraswathi
type: Text
identifier URI: http://hdl.handle.net/2429/84371