Health care interaction experiences of parents of children living with medical complexity during COVID-19
department or school: Health and Social Development, Faculty of (Okanagan)
department or school: Nursing, School of (Okanagan)
data provider: DSpace
degree campus: UBCO
creator: Smith, Kathryn Emma
issued: 2021-12-14T19:25:29Z
issued: 2021
related degree: Master of Science in Nursing - MSN
degree grantor: University of British Columbia
description: Children with medical complexity (CMC) are a growing population who often access health care services more frequently than children without medical complexity and whose parents commonly assume the medical caregiver role in addition to their regular parenting responsibilities. CMC usually have high care needs, frequent use of health care services, functional limitations, and at least one complex, chronic condition. Despite the growing population, the frequency of accessing health care services, and the role of parents as medical caregivers, there is a lack of focused research regarding the experiences of parents following hospital discharge or medical interactions. This research study aimed to explore parents’ experiences and provide clinicians with recommendation from parents on how to improve in-patient hospital discharge or medical interaction processes. Using interpretive description methodology, this study was conducted using semi-structured interviews with five parents of CMC living within the interior of British Columbia about their experiences with in-patient hospital discharge or medical interactions of their CMC. The study identified five main themes related to parents’ experiences: parents’ emotional response to interactions; being acknowledged as an expert; providers building connections with children; accessibility to health care services; and COVID-19 pandemic-related challenges. In addition, six themes related to recommendations from parents for clinicians to improve processes were identified: the importance of forming connections with children; the importance of clear and effective communication; individualized approaches to care; creating and communicating a plan of care; including parents and children as part of the health care team; and the importance of clustering care. The results indicate parents’ experiences during and after health care interactions are complex events which can be influenced by the clinician providing care to the CMC and their …
aggregated CHO: https://circle.library.ubc.ca/rest/handle/2429/80442
note: HEALTH CARE INTERACTION EXPERIENCES OF PARENTS OF CHILDREN LIVING WITH MEDICAL COMPLEXITY DURING COVID-19 by Kathryn Emma Smith B.Sc.N.,Thompson Rivers University, 2011 A THESIS SUBMITTED IN PARTIAL FULFILLMENT OF THE REQUIREMENTS FOR THE DEGREE OF MASTER OF SCIENCE IN NURSING in THE COLLEGE OF GRADUATE STUDIES (Nursing) THE UNIVERSITY OF BRITISH COLUMBIA (Okanagan) December 2021 ©Kathryn Emma Smith, 2021 ii The following individuals certify that they have read, and recommend to the College of Graduate Studies for acceptance, a thesis/dissertation entitled: Health Care Interaction Experiences of Parents of Children Living with Medical Complexity During COVID-19 submitted by Kathryn Emma Smith in partial fulfillment of the requirements of the degree of Master of Science in Nursing. Dr. Lise Olsen, UBC Okanagan, Faculty of Health and Social Development, Nursing Supervisor Dr. Kathy Rush, UBC Okanagan, Faculty of Health and Social Development, Nursing Supervisory Committee Member Dr. Florriann Fehr, Thompson Rivers University, School of Nursing Supervisory Committee Member Dr. Christine Cassidy, Dalhousie University, School of Nursing, Faculty of Health University Examiner iii Abstract Children with medical complexity (CMC) are a growing population who often access health care services more frequently than children without medical complexity and whose parents commonly assume the medical caregiver role in addition to their regular parenting responsibilities. CMC usually have high care needs, frequent use of health care services, functional limitations, and at least one complex, chronic condition. Despite the growing population, the frequency of accessing health care services, and the role of parents as medical caregivers, there is a lack of focused research regarding the experiences of parents following hospital discharge or medical interactions. This research study aimed to explore parents’ experiences and provide clinicians with recommendation from parents on how to i…
has type: Thesis/Dissertation
date issued: 2022-02
is shown at: 10.14288/1.0406064
language: eng
degree discipline: Nursing
provider: Vancouver : University of British Columbia Library
publisher: University of British Columbia
rights: Attribution-NonCommercial-NoDerivatives 4.0 International
rights URI: http://creativecommons.org/licenses/by-nc-nd/4.0/
scholar level: Graduate
contributor: Olsen, Lise
type: Text
identifier URI: http://hdl.handle.net/2429/80442