The development of peer social support networks among families of children with neurodevelopmental and intellectual disabilities attending physical activity programs
department or school: Medicine, Faculty of
department or school: Medicine, Department of
data provider: DSpace
degree campus: UBCV
creator: Chakraborti, Michelle
issued: 2021-12-09T21:10:30Z
issued: 2021
related degree: Doctor of Philosophy - PhD
degree grantor: University of British Columbia
description: According to the World Health Organization, “family” is an important contextual factor for childcare and development of children with neurodevelopmental and intellectual disabilities (NDID). However, caregiving-related stressors result in multiple challenges, contributing towards the families’ social isolation and distress. This further affects families’ quality of life, mental health and ultimately childcare. Peer support networks represent established strategies for social integration; however, families are often unable to attend these networks due to unavailable time and childcare resources. Therefore, ways to socially integrate families, while simultaneously supporting the child are warranted. Community-based adapted physical activity programs (PA programs) represent a promising approach. This thesis investigated the potential of peer support network development at PA programs, their impact on the families’ quality of life, resilience and empowerment and relative importance compared to other peer support networks. A mixed-methods approach was implemented where quantitative information for the cross-sectional study was collected using standardized scales on perceived social support, family quality of life, resilience, and self-efficacy and qualitative information was collected using semi-structured interviews and ethnographic observation. Fifty families having a child with NDID participated from twenty-two programs across British Columbia. Interviews demonstrated network formation was facilitated by the presence of families at the PA program that provided them with valuable time to interact with other parents. The regularity of the programs’ schedule, and its duration were important factors. Moreover, the presence of children with similar abilities facilitated the child’s friendship development, which appeared to be a motivation for parents to form networks. Parental networks developed in two ways, through their child’s friendship’s resulting in parental interact…
aggregated CHO: https://circle.library.ubc.ca/rest/handle/2429/80433
note: THE DEVELOPMENT OF PEER SOCIAL SUPPORT NETWORKS AMONG FAMILIES OF CHILDREN WITH NEURODEVELOPMENTAL AND INTELLECTUAL DISABILITIES ATTENDING PHYSICAL ACTIVITY PROGRAMS by Michelle Chakraborti M.Sc., The University of British Columbia, 2011 A THESIS SUBMITTED IN PARTIAL FULFILLMENT OF THE REQUIREMENTS FOR THE DEGREE OF DOCTOR OF PHILOSOPHY in THE FACULTY OF GRADUATE AND POSTDOCTORAL STUDIES (EXPERIMENTAL MEDICINE) THE UNIVERSITY OF BRITISH COLUMBIA (Vancouver) December 2021 © Michelle Chakraborti, 2021 ii The following individuals certify that they have read, and recommend to the Faculty of Graduate and Postdoctoral Studies for acceptance, the dissertation entitled: The Development of Peer Social Support Networks Among Families of Children with Neurodevelopmental Disabilities Attending Physical Activity Programs submitted by Michelle Chakraborti in partial fulfillment of the requirements for the degree of Doctor of Philosophy in Experimental Medicine Examining Committee: Dr. Jean-Paul Collet, Professor, Department of Pediatrics, UBC Supervisor Dr. William McKellin, Professor, Department of Anthropology, UBC Co-Supervisor Dr. Anton Miller, Associate Professor, Department of Pediatrics, UBC Supervisory Committee Member Dr. Tim Stainton, Professor, School of Social Work, UBC University Examiner Dr. Rachelle Hole, Associate Professor, School of Social Work, UBC University Examiner iii Abstract According to the World Health Organization, “family” is an important contextual factor for childcare and development of children with neurodevelopmental and intellectual disabilities (NDID). However, caregiving-related stressors result in multiple challenges, contributing towards the families’ social isolation and distress. This further affects families’ quality of life, mental health and ultimately childcare. Peer support networks represent established strategies for social integration; however, families are often unable to attend these networks due to unavailable time and childcare…
has type: Thesis/Dissertation
date issued: 2022-05
is shown at: 10.14288/1.0404544
language: eng
degree discipline: Experimental Medicine
provider: Vancouver : University of British Columbia Library
publisher: University of British Columbia
rights: Attribution-NonCommercial-NoDerivatives 4.0 International
rights URI: http://creativecommons.org/licenses/by-nc-nd/4.0/
scholar level: Graduate
contributor: Collet, Jean-Paul
contributor: McKellin, William
type: Text
identifier URI: http://hdl.handle.net/2429/80433