"Medicine, Faculty of"@en . "Population and Public Health (SPPH), School of"@en . "DSpace"@en . "Teschke, Kay"@en . "Chu, Rachel"@en . "Marino, Suhail"@en . "Harris, Anne"@en . "Tsui, Joseph CK"@en . "Marion, Steve"@en . "2012-06-06T21:30:39Z"@en . "2008-08-12"@en . "We conducted a survey of adult British Columbians, asking the following questions:\r\n1. Are you willing to participate in health research?\r\n2. How would the organization contacting you affect whether you felt comfortable and willing to participate in health research?\r\n3. How would the method of selecting you affect whether you felt comfortable and willing to participate in health research?\r\n4. Would other factors make you feel better or worse about participating in health research?\r\n\u00EF\u00BF\u00BC"@en . "https://circle.library.ubc.ca/rest/handle/2429/42456?expand=metadata"@en . "Kay Teschke*, Rachel Chu*, Suhail Marino* Anne Harris*, Joseph Tsui\u00E2\u0080\u00A0, Steve Marion* * Dept. of Health Care and Epidemiology \u00E2\u0080\u00A0 Dept. of Neurology University of British Columbia, Vancouver, Canada Understanding Attitudes to Health Research or \u00E2\u0080\u009CWho can phone you at dinner time?\u00E2\u0080\u009Dpopulation-based research, back in the old days . . . Voters List, Medical Insurance List issued to researchers, subjects selected followed by call to subject to invite participation letter mailed to subject by researchers to introduce studyfollowed by call to subject to invite participation letter mailed to subject by researchers to introduce study Voters List, Medical Insurance List issued to researchers, subjects selected Freedom of Information and Protection of Privacy Act \u00E2\u0080\u00A2 expressly forbids the use of individual identifying information for contacting study subjects in 2003 . . .the new regime, scenario 1 . . . selection made by government agency letters of introduction sent from government government agent calls subject for permission to release name to researchers process turned over to researcher participationthe new regime, scenario 2 . . . \u00E2\u0080\u00A2 No release of names to researchers \u00E2\u0080\u0093 Scenario 1 very cumbersome for government, and \u00E2\u0080\u0093 does not comply with the legislationrationale for legislation change \u00E2\u0080\u00A2 Government personnel occasionally received angry complaints about release of contact info without permission \u00E2\u0080\u0093 feeling that this was the tip of the iceberg \u00E2\u0080\u00A2 In contrast, researchers often hear thanks that research is being conducted \u00E2\u0080\u00A2 Considerable legal & ethical scholarship on privacy issues \u00E2\u0080\u00A2 But little literature on public opinions about participation in health researchsurvey of public opinions Four questions: 1. Are you willing to participate in health research? 2. How would the organization contacting you affect whether you felt comfortable and willing to participate in health research? 3. How would the method of selecting you affect whether you felt comfortable and willing to participate in health research? 4. Would other factors make you feel better or worse about participating in health research?Sample of 3000 Metro Vancouver and rural Vancouver Island households, drawn from electronic telephone directory file, represents ~ 50% of population of province of British Columbia Adult with next birthday asked to respond Questionnaire mailed to respondents, with return-mail envelope Non-responders followed up with 2nd and 3rd mailings, and telephone calls 1st mailing 2nd mailing 3rd mailing Total N=854 + N=414 + N=207 = 1475 (55%) 314 = ineligible 183 = refused 1028 = no contact study methods1. Are you willing to participate in health research?2. How would the organization contacting you affect whether you felt comfortable and willing to participate in health research?3. How would the method of selecting you affect whether you felt comfortable and willing to participate in health research?4. Would any of the following make you feel better or worse about participating in health research?limitations . . . \u00E2\u0080\u00A2 Effect of participation rate on results unknown \u00E2\u0080\u0093 main effect likely to be on overall willingness \u00E2\u0080\u0093 those who answered in the 1st, 2nd, and 3rd mailings had little difference in their answers to questions 2, 3, and 4 \u00E2\u0080\u00A2 Effect of the fact that a university conducted this research is unknown \u00E2\u0080\u0093 another sample, not reported here, was initially contacted by the Ministry of Health, and had little difference in their answers to questions 2, 3, and 4conclusions . . . \u00E2\u0080\u00A2 Great majority of respondents willing to take part in health research \u00E2\u0080\u00A2 Organization contacting participants makes a difference to participation \u00E2\u0080\u0093 universities and hospitals > government >> private research firms \u00E2\u0080\u00A2 Modes of selection similar in effect on participation \u00E2\u0080\u00A2 Strongest motivators for participating are future health benefits of the researchthanks \u00E2\u0080\u00A2 Study participants \u00E2\u0080\u00A2 Research assistants \u00E2\u0080\u0093 Saleema Dhalla \u00E2\u0080\u0093 Hasina Jamal \u00E2\u0080\u00A2 Malcolm Maclure \u00E2\u0080\u00A2 Lianne Warren \u00E2\u0080\u00A2 BC Ministry of Health \u00E2\u0080\u00A2 BC Medical Services Foundation"@en . "Conference Paper"@en . "10.14288/1.0132719"@en . "eng"@en . "Unreviewed"@en . "Vancouver : University of British Columbia Library"@en . "Attribution-NonCommercial-NoDerivs 3.0 Unported"@en . "http://creativecommons.org/licenses/by-nc-nd/3.0/"@en . "Researcher"@en . "Understanding attitudes to health research or \u00E2\u0080\u009Cwho can phone you at dinner time?\u00E2\u0080\u009D"@en . "Text"@en . "http://hdl.handle.net/2429/42456"@en .