Volunteer navigation in dementia care : adapting Nav-CARE for caregivers of persons living with dementia
department or school: Health and Social Development, Faculty of (Okanagan)
department or school: Nursing, School of (Okanagan)
data provider: DSpace
degree campus: UBCO
creator: Smith, Madison
issued: 2025-03-19T22:19:05Z
issued: 2025
related degree: Doctor of Philosophy - PhD
degree grantor: University of British Columbia
description: This research aimed to adapt Nav-CARE (Navigation - Connecting, Advocating, Resourcing, Engaging), a volunteer-led navigation program for people with life-limiting illnesses, to support caregivers of persons living with dementia and assess the feasibility of doing so. This research took place over three distinct phases: 1) a review of the literature regarding caregivers' needs, existing support programs, and dementia navigation programs; 2) Study One: a modified e-Delphi study to identify caregivers' needs and the competencies volunteer navigators (VN) need to be trained in to support caregivers to meet these needs; and 3) Study Two: a pilot feasibility study to evaluate the feasibility of adapting the Nav-CARE program. Study One established two comprehensive lists: 1) caregiversâ needs and 2) VN competencies. These lists informed the development of the VN training manual used in Study Two. Study Two utilized VN self-perceived confidence questionnaires, VN visit reports, and semi-structured interviews with caregivers and VN to evaluate four key feasibility domains: 1) assessment procedures, 2) implementation resources, 3) intervention delivery, adherence, and safety, and 4) acceptability. Collectively, findings suggest that it is feasible to adapt the Nav-CARE program to support caregivers and people with dementia, but further adjustments are needed to improve the programâs delivery, adherence, and acceptability. The high response rates and complete data from the questionnaire demonstrate that this assessment procedure was both effective and acceptable. Similarly, the semi-structured interviews, in which all eligible participants participated, and data saturation was reached, were effective and acceptable. However, visit reports were completed infrequently and, when submitted, often lacked thoroughness. Specific findings highlighted that the program was meaningful to caregivers and VN. They developed strong relationships, and VNs provided emotional and relational su…
aggregated CHO: https://circle.library.ubc.ca/rest/handle/2429/90515
note: Volunteer Navigation in Dementia Care: Adapting Nav-CARE for caregivers of persons living with dementia by Madison Smith MPH, Simon Fraser University, 2018 BA Hons, University of Saskatchewan, 2016 A DISSERTATION SUBMITTED IN PARTIAL FULFILLMENT OF THE REQUIREMENTS FOR THE DEGREE OF Doctor of Philosophy in THE COLLEGE OF GRADUATE STUDIES (Nursing) THE UNIVERSITY OF BRITISH COLUMBIA (Okanagan) February 2025 © Madison Smith, 2025 ii The following individuals certify that they have read, and recommend to the College of Graduate Studies for acceptance, a dissertation entitled: Volunteer Navigation in Dementia Care: Adapting Nav-CARE for caregivers of persons living with dementia submitted by Madison Smith in partial fulfillment of the requirements of the degree of Doctor of Philosophy. Dr. Barbara Pesut, Faculty of Health and Social Development Supervisor Dr. Kathy Rush, Faculty of Health and Social Development Supervisory Committee Member Dr. Caitlin McArthur, Faculty of Health Supervisory Committee Member Dr. Colin Reid, Faculty of Health and Social Development University Examiner Dr. Carrie McAiney, Faculty of Health External Examiner iii Abstract This research aimed to adapt Nav-CARE (Navigation - Connecting, Advocating, Resourcing, Engaging), a volunteer-led navigation program for people with life-limiting illnesses, to support caregivers of persons living with dementia and assess the feasibility of doing so. This research took place over three distinct phases: 1) a review of the literature regarding caregivers' needs, existing support programs, and dementia navigation programs; 2) Study One: a modified e-Delphi study to identify caregivers' needs and the competencies volunteer navigators (VN) need to be trained in to support caregivers to meet these needs; and 3) Study Two: a pilot feasibility study to evaluate the feasibility of adapting the Nav-CARE program. Study One established two comprehensive lists: 1) caregiversâ needs and 2) VN competencies. These lists …
has type: Thesis/Dissertation
date issued: 2025-05
is shown at: 10.14288/1.0448220
language: eng
degree discipline: Nursing
provider: Vancouver : University of British Columbia Library
publisher: University of British Columbia
rights: Attribution-NonCommercial-NoDerivatives 4.0 International
rights URI: http://creativecommons.org/licenses/by-nc-nd/4.0/
scholar level: Graduate
contributor: Pesut, Barbara
type: Text
identifier URI: http://hdl.handle.net/2429/90515