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Smart Discharges Uganda Under 5: Phase I clinical data of children 0-6 months Wiens, Matthew; Kumbakumba, Elias; Businge, Stephen; Tagoola, Abner; Larson, Charles P; Moschovis, Peter P; Singer, Joel; Kumbakumba, Elias; Novakowski, Stefanie; Lavoie, Pascal; Dumont, Guy AM; Ansermino, J Mark; Kabakyenga, Jerome; Kissoon, Niranjan
Description
This data is a subset of the Smart Discharges Uganda Under 5 years parent study and is specific to the Phase I observational cohort of children aged 0-6 months.
<br/><strong>Objective(s):</strong> Used as part of the Smart Discharge prediction modelling for adverse outcomes such as post-discharge death and readmission.
<br /><strong>Data Description:</strong> All data were collected at the point of care using encrypted study tablets and these data were then uploaded to a Research Electronic Data Capture (REDCap) database hosted at the BC Children’s Hospital Research Institute (Vancouver, Canada). At admission, trained study nurses systematically collected data on clinical, social and demographic variables. Following discharge, field officers contacted caregivers at 2 and 4 months by phone, and in-person at 6 months, to determine vital status, post-discharge health-seeking, and readmission details. Verbal autopsies were conducted for children who had died following discharge. .
<br /><strong>Data Processing:</strong> Created z-scores for anthropometry variables using height and weight according to WHO cutoff. Distance to hospital was calculated using latitude and longitude. Extra symptom and diagnosis categories were created based on text field in these two variables. BCS score was created by summing all individual components.
<br /><strong>Limitations:</strong> There are missing dates and the admission, discharge, and readmission dates are not in order.
<br /><strong>Ethics Declaration:</strong> This study was approved by the Mbarara University of Science and Technology Research Ethics Committee (No. 15/10-16), the Uganda National Institute of Science and Technology (HS 2207), and the University of British Columbia / Children & Women’s Health Centre of British Columbia Research Ethics Board (H16-02679). This manuscript adheres to the guidelines for STrengthening the Reporting of OBservational studies in Epidemiology (STROBE).; <br /><strong>NOTE for restricted files:</strong> If you are not yet a CoLab member, please complete our <a href = "https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79">membership application survey</a> to gain access to restricted files within 2 business days.
<br />Some files may remain restricted to CoLab members. These files are deemed more sensitive by the file owner and are meant to be shared on a case-by-case basis. Please contact the CoLab coordinator on <a href = "https://www.bcchr.ca/pediatric-sepsis-data-colab">this page</a> under "collaborate with the pediatric sepsis colab."
Item Metadata
Title |
Smart Discharges Uganda Under 5: Phase I clinical data of children 0-6 months
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Creator | |
Contributor | |
Date Issued |
2024-10-22
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Description |
This data is a subset of the Smart Discharges Uganda Under 5 years parent study and is specific to the Phase I observational cohort of children aged 0-6 months.
<br/><strong>Objective(s):</strong> Used as part of the Smart Discharge prediction modelling for adverse outcomes such as post-discharge death and readmission. <br /><strong>Data Description:</strong> All data were collected at the point of care using encrypted study tablets and these data were then uploaded to a Research Electronic Data Capture (REDCap) database hosted at the BC Children’s Hospital Research Institute (Vancouver, Canada). At admission, trained study nurses systematically collected data on clinical, social and demographic variables. Following discharge, field officers contacted caregivers at 2 and 4 months by phone, and in-person at 6 months, to determine vital status, post-discharge health-seeking, and readmission details. Verbal autopsies were conducted for children who had died following discharge. . <br /><strong>Data Processing:</strong> Created z-scores for anthropometry variables using height and weight according to WHO cutoff. Distance to hospital was calculated using latitude and longitude. Extra symptom and diagnosis categories were created based on text field in these two variables. BCS score was created by summing all individual components. <br /><strong>Limitations:</strong> There are missing dates and the admission, discharge, and readmission dates are not in order. <br /><strong>Ethics Declaration:</strong> This study was approved by the Mbarara University of Science and Technology Research Ethics Committee (No. 15/10-16), the Uganda National Institute of Science and Technology (HS 2207), and the University of British Columbia / Children & Women’s Health Centre of British Columbia Research Ethics Board (H16-02679). This manuscript adheres to the guidelines for STrengthening the Reporting of OBservational studies in Epidemiology (STROBE).; <br /><strong>NOTE for restricted files:</strong> If you are not yet a CoLab member, please complete our <a href = "https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79">membership application survey</a> to gain access to restricted files within 2 business days. <br />Some files may remain restricted to CoLab members. These files are deemed more sensitive by the file owner and are meant to be shared on a case-by-case basis. Please contact the CoLab coordinator on <a href = "https://www.bcchr.ca/pediatric-sepsis-data-colab">this page</a> under "collaborate with the pediatric sepsis colab." |
Subject | |
Type | |
Language |
English
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Date Available |
2022-12-02
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Provider |
University of British Columbia Library
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License |
CC BY-NC-SA 4.0
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DOI |
10.14288/1.0446868
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URI | |
Publisher DOI | |
Rights URI | |
Aggregated Source Repository |
Dataverse
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Licence
CC BY-NC-SA 4.0