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Parental coping with a child’s epilespy: a secondary analysis using the Canam Adaptive Task Framework Calvert, Susan Ellen Catherine
Abstract
This qualitative study is a secondary analysis of an existing data set generated from a descriptive study of parents of children with epilepsy. The conceptual framework that provided a basis for this study was the Canam Adaptive Task Framework (ATF) and the purpose of this study was to apply the ATF to transcribed narrative data from a sample of parents to determine if the adaptive tasks effectively represented their experiences. The ATF is based on the premise that there is a series of eight adaptive tasks common to parents of children with chronic conditions, regardless of the child's specific medical condition. The ATF is an organizing structure that guides the nurse in not only identifying the common issues, but in determining the knowledge, skills, and resources required for the parent to cope. By determining the representativeness of the ATF with this condition-specific data set, the credibility of the ATF with parents of children with chronic conditions may be increased. In the current study, 12 families were randomly selected from the original, convenience sample of 20 families from the Seizure Clinic at BC's Children's Hospital. Data were analyzed using latent content analysis (Morse & Field, 1995) according to the appropriate adaptive task categories. Through the study, the author's findings demonstrate that the ATF provides the nurse with credible and practical direction to collaborate with parents in identifying the knowledge, skills, and resources needed by parents to cope effectively with their child's condition. More specifically, these parents had difficulty accessing adequate, useful information about their child's condition, developing effective working relationships with health care professionals, communicating with their children's teachers, and promoting normalization in their families' lives. A major conclusion indicates that by being representative of these parents' experiences, the ATF is considered to be effective in identifying the difficulties and strengths of parents of children with epilepsy and in facilitating the acquisition of their coping strategies. Implications for nursing practice, education, and research are presented.
Item Metadata
Title |
Parental coping with a child’s epilespy: a secondary analysis using the Canam Adaptive Task Framework
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Creator | |
Publisher |
University of British Columbia
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Date Issued |
1998
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Description |
This qualitative study is a secondary analysis of an existing data set generated from a descriptive
study of parents of children with epilepsy. The conceptual framework that provided a basis for
this study was the Canam Adaptive Task Framework (ATF) and the purpose of this study was to
apply the ATF to transcribed narrative data from a sample of parents to determine if the adaptive
tasks effectively represented their experiences. The ATF is based on the premise that there is a
series of eight adaptive tasks common to parents of children with chronic conditions, regardless
of the child's specific medical condition. The ATF is an organizing structure that guides the
nurse in not only identifying the common issues, but in determining the knowledge, skills, and
resources required for the parent to cope. By determining the representativeness of the ATF with
this condition-specific data set, the credibility of the ATF with parents of children with chronic
conditions may be increased. In the current study, 12 families were randomly selected from the
original, convenience sample of 20 families from the Seizure Clinic at BC's Children's Hospital.
Data were analyzed using latent content analysis (Morse & Field, 1995) according to the
appropriate adaptive task categories. Through the study, the author's findings demonstrate that
the ATF provides the nurse with credible and practical direction to collaborate with parents in
identifying the knowledge, skills, and resources needed by parents to cope effectively with their
child's condition. More specifically, these parents had difficulty accessing adequate, useful
information about their child's condition, developing effective working relationships with health
care professionals, communicating with their children's teachers, and promoting normalization in
their families' lives. A major conclusion indicates that by being representative of these parents'
experiences, the ATF is considered to be effective in identifying the difficulties and strengths of
parents of children with epilepsy and in facilitating the acquisition of their coping strategies.
Implications for nursing practice, education, and research are presented.
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Extent |
4877121 bytes
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Genre | |
Type | |
File Format |
application/pdf
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Language |
eng
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Date Available |
2009-05-04
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Provider |
Vancouver : University of British Columbia Library
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Rights |
For non-commercial purposes only, such as research, private study and education. Additional conditions apply, see Terms of Use https://open.library.ubc.ca/terms_of_use.
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DOI |
10.14288/1.0099292
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URI | |
Degree | |
Program | |
Affiliation | |
Degree Grantor |
University of British Columbia
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Graduation Date |
1998-05
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Campus | |
Scholarly Level |
Graduate
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Aggregated Source Repository |
DSpace
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Item Media
Item Citations and Data
Rights
For non-commercial purposes only, such as research, private study and education. Additional conditions apply, see Terms of Use https://open.library.ubc.ca/terms_of_use.