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Know your rights with research: A new approach to knowledge exchange with youth Johnson, Joy; Shoveller, Jean; Chabot, Cathy; Read, Jennifer 2009-04

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Know Your Rights with Research: A New Approach to Knowledge Exchange with Youth Cathy Chabot, Research Manager Jean Shoveller, Principal Investigator Joy Johnson, Co-Investigator Jennifer Reade, Research Coordinator Our interdisciplinary research team examines the ways in which gender, culture, and place help to shape the social relations and structural conditions that affect the sexual health of young people, particularly those living in northern, rural, and remote communities. Gender Norms Introduction „ How can these issues become opportunities for knowledge exchange? „ What are some of the ethical issues encountered in participatory research with youth? „ Develop new ways to meaningfully engage in a social determinants of health analysis of youth sexual health outcomes. „ Most research that purports to use participatory approaches focuses on “consulting with” and “informing” youth about their sexual health needs. „ Participatory action research (PAR) “is a collaborative approach in which those typically ‘studied’ are involved as decision-makers and co-researchers in some or all stages of the research.” (Cahill, 2007) „ Our study challenged existing research models and addresses the under-explored area of the social determinants of sexual health by engaging youth as co-researchers. Developing New Research Approaches to Engage Youth Youth Co-Researchers’ Training „ YCRs received training in research methods including: „ Research ethics „ Recruitment „ Interviewing techniques „ Participant observation „ Reflexivity „ Data analysis „ Youth sexual health issues Aims & Methods „ What were the existing policies regarding how academic research with youth is conducted? „ What were youth’s previous experiences with research re: consent procedures, research methods, and engagement in the research process? „ In-depth interviews were conducted with: „ 9 community stakeholders „ 20 youth „ Many youth did not understand the purpose of previous studies they had participated in. „ 7 out of 20 reported not being asked to give informed consent. „ Many believed their participation in school-based research was compulsory. „ Youth rarely interacted with researchers outside of the study setting. „ Many did not know how data would be used or stored. „ Youth rarely could give feedback to researchers and did not know how to access study findings. Findings Know Your Rights with Research Card Implications for Knowledge Exchange „ Educate youth about the informed consent process to mitigate risk. „ Demonstrate respect for youth’s developing sense of autonomy by allowing them to consent on their own behalf. „ This may empower youth and increase their involvement in the research process. „ This may encourage marginalized youth’s participation and allow researchers’ to obtain a more diverse sample. Our Research Team Stephenie Berlinger (YCR), Jean Shoveller (PI) & Jennifer Reade (RC) Jesse Ogen (YCR) Joy Johnson & Ken Prkachin (Co-Invs)


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