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Planning for knowledge exchange in a study of the safety-related experiences of parents of children with… van Dooren, Sylvia; Olsen, Lise 2009-04

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Planning for Knowledge Exchange in a Study of the Safety-Related Experiences of Parents of Children with Disabilities and Chronic Conditions Presenters: L. Olsen1,2,3,4 and S. van Dooren1,2,3 , 1. Centre for Community Child Health Research 2. B.C. Injury Research and Prevention Unit 3. University of British Columbia 4. Nexus, Alumnus Background – General In 2004 approximately 950 000 children under 18 years died as a result of an unintentional injury. Unintentional injuries are the leading cause of death for children over 9 years. Tens of millions of children require hospital care every year for non- fatal injuries. In high-income countries, child injuries account for 40% of all child deaths. World Report on Child Injury Prevention (WHO & Unicef, 2009) 56 countries participated. Background – General Background – Children with disabilities Children (0 -17 yrs) with a single disability higher prevalence (Sinclair et al., 2008) Higher percentages of nonfatal injury in previous 3 months are found in children (5 -17 yrs) with asthma; ADHD; vision disability (Xiang et al., 2005) In children 3 - 5 yrs (over the period of 1 year), children with autism, ADHD and other psychopathology were 2 – 3 times more likely to experience an injury that needed medical attention (Lee et al., 2008) Children with hearing loss (1 - 18 yrs) were more than twice likely to have been treated for an injury (Mann et al.,2007) Background – Injury Prevention Supervision: Proximity and attention relevant factors (Morrongiello et al., 2006, 2004) Parenting interventions: Provided within the home and multi-faceted are effective in reducing childhood injury (Kendrick et al., 2008) The law The media Injury prevention programs Parents Background – Study purpose Study to address gaps in knowledge: How do parents of children with disabilities and chronic conditions: - Perceive risks - Manage safety issues Methods Who: 20 -25 parents of children between 1 and 5 years Children who have a disability or chronic health condition How: Grounded theory methodology Semi structured interviews, transcribed verbatim Why: To develop a rich description of how parents manage child safety issues To provide theory grounded in the data To increase practitioners awareness To provide groundwork for a survey tool Knowledge to Action Process Currently at knowledge creation stage Knowledge content: - How parents perceive and manage safety-related issues in relation to their children with disabilities/chronic conditions Target audience: - Present: Researchers and Clinicians (Future: Parents, families, policy makers, media) As knowledge is developed, move towards: - Knowledge tools/products - Tailoring knowledge - Action cycle (application of knowledge) Knowledge to Action Process Planned Activities – Dissemination to: Injury prevention & child health researchers: - Peer-reviewed journal publications - Child health, injury prevention conference presentations - Teleconference and seminar presentations - Website summaries Clinicians working with families of children with disabilities/chronic conditions: - Clinical rounds or presentations - Telehealth presentations - Newsletters, professional journals Knowledge to Action Process Integrated KT approach reflected in: Collaborative research approach: - Multidisciplinary team - Clinician researchers part of team - Clinical perspectives incorporated through out research process Limitations: - Not all types of clinicians included - Clinician/researcher perspective Issues and Challenges Planning KTA process and activities: - Fit with stage of research - Fit with type of knowledge generated - Issues of intensity of KT - Allocating time and resources appropriately Issues and Challenges Adapting to local context and assessing barriers: - Summer intern to conduct literature review - Developing plans for tailoring messages and methods - Assess learning opportunities, needs and preferences for different groups of clinicians (nurses, physicians, OT’s, PT’s) in relevant settings Challenges include: Meeting varied needs and expectations for: - Information and approaches - Content & framing of messages Questions to Consider How to assess and address end-user expectations regarding the information research can provide? How can the diverse needs of different groups of clinicians be addressed? Are there ways that KTA processes can be undertaken in clinical settings in more integrated ways? - Linking efforts across research topics? - Reducing duplication of efforts - Developing site specific resources to assist with KTA Thank you! Study Team Members: L. Olsen (PI),1,2,3,4 S. van Dooren (Study Coordinator), 1,2,3 , M. Brussoni (Co-I),1,2,3,5  A. Miller (Co-I), 1,3,5,6 M. O’Donnell (Co-I), 1,3,5,6 J. Bottorff (Collaborator), 7,8 S. Cadell (Collaborator). 9 1. Centre for Community Child Health Research 2. B.C. Injury Research and Prevention Unit 3. University of British Columbia 4. Nexus, Alumnus 5. UBC Department of Pediatrics 6. Sunny Hill Health Centre for Children 7. University of British Columbia, Okanagan 8. Centre for Healthy Living and Chronic Disease Prevention 9. Wilfred Laurier University Funding support received from: BC Children’s Hospital Foundation  (2008 Telethon Awards)


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