Open Collections

McWhirter, Rebekah E.; Critchley, Christine R.; Nicol, Dianne; Chalmers, Don; Whitton, Tess; Otlowski, Margaret; Burgess, Michael M.; Dickinson, Joanne L.

Multidisciplinary Digital Publishing Institute

Public trust is critical in any project requiring significant public support, both in monetary terms and to encourage participation. The research community has widely recognized the centrality of public trust, garnered through community consultation, to the success of large-scale epidemiology. This paper examines the potential utility of the deliberative democracy methodology within the public health research setting. A deliberative democracy event was undertaken in Tasmania, Australia, as part of a wider program of community consultation regarding the potential development of a Tasmanian Biobank. Twenty-five Tasmanians of diverse backgrounds participated in two weekends of deliberation; involving elements of information gathering; discussion; identification of issues and formation of group resolutions. Participants demonstrated strong support for a Tasmanian Biobank and their deliberations resulted in specific proposals in relation to consent; privacy; return of results; governance; funding; and, commercialization and benefit sharing. They exhibited a high degree of satisfaction with the event, and confidence in the outcomes. Deliberative democracy methodology is a useful tool for community engagement that addresses some of the limitations of traditional consultation methods.

Article

eng

Vancouver : University of British Columbia Library

10.14288/1.0378119

Other UBC; Non UBC

10.3390/jpm4040459

Faculty

DSpace